Surrogate decision makers may be poorly prepared to give informed consent for genomics research for their loved ones in intensive care. A review of the challenges and strategies associated with obtaining surrogates’ consent for genomics research in intensive care patients revealed that few well-controlled studies have been done on this topic. Yet, a major theme in the literature is the role of health care professionals in guiding surrogates through the informed consent process rather than simply witnessing a signature. Informed consent requires explicit strategies to approach potential surrogates effectively, educate them, and ensure that informed consent has been attained.
Surrogate Consent for Genomics Research in Intensive Care
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Ann K. Shelton, Anne F. Fish, J. Perren Cobb, Jean A. Bachman, Ruth L. Jenkins, Victor Battistich, Bradley D. Freeman; Surrogate Consent for Genomics Research in Intensive Care. Am J Crit Care 1 September 2009; 18 (5): 418–426. doi: https://doi.org/10.4037/ajcc2009473
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