Surrogate decision makers may be poorly prepared to give informed consent for genomics research for their loved ones in intensive care. A review of the challenges and strategies associated with obtaining surrogates’ consent for genomics research in intensive care patients revealed that few well-controlled studies have been done on this topic. Yet, a major theme in the literature is the role of health care professionals in guiding surrogates through the informed consent process rather than simply witnessing a signature. Informed consent requires explicit strategies to approach potential surrogates effectively, educate them, and ensure that informed consent has been attained.
Surrogate Consent for Genomics Research in Intensive Care
Ann K. Shelton, Anne F. Fish, J. Perren Cobb, Jean A. Bachman, Ruth L. Jenkins, Victor Battistich, Bradley D. Freeman; Surrogate Consent for Genomics Research in Intensive Care. Am J Crit Care 1 September 2009; 18 (5): 418–426. doi: https://doi.org/10.4037/ajcc2009473
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