End-stage liver disease (ESLD), the final stage of chronic liver disease, is treated with liver transplant. Many patients have serious ESLD-related complications and are admitted to the intensive care unit for treatment. Such patients are temporarily unsuitable to undergo transplant surgery and are placed into a temporarily inactive category, “status 7,” on the transplant waiting list. Status 7 patients account for about 15% of all patients on the list. To describe the experience of a status 7 patient on the liver transplant waiting list from the perspectives of family members, 38 hours of bedside observation of participants, 9 semistructured interviews with 6 family members, and 9 semistructured interviews with 8 health care professionals from nursing, medicine, and other health care disciplines were done. Data were analyzed via conventional content analysis. Family members’ perspectives fit into 3 phases that correspond to the progression of the patient’s clinical condition: dealing with crisis, confusion and frustration, and back on the road to transplant. All 3 phases related to 1 goal: getting the patient’s status reactivated on the liver transplant waiting list. This case exposes the struggles that patients with ESLD and their families may go through during the status 7 period and could serve as a starting point for further examination of this period.
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Cases of Note| November 01 2014
The Power of The Liver Transplant Waiting List: A Case Presentation
Lissi Hansen, RN, PhD ;
Lissi Hansen is an associate professor, Yi Yan is a graduate student, and Susan J. Rosenkranz is a research associate in the School of Nursing at Oregon Health & Science University in Portland.
Corresponding author: Lissi Hansen, Oregon Health & Science University, School of Nursing, SN-ORD, 3455 SW US Veterans Hospital Rd, Portland, OR 97239-2941 (e-mail: firstname.lastname@example.org).
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Yi Yan, RN ;
Susan J. Rosenkranz, MA
Am J Crit Care (2014) 23 (6): 510–515.
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Lissi Hansen, Yi Yan, Susan J. Rosenkranz; The Power of The Liver Transplant Waiting List: A Case Presentation. Am J Crit Care 1 November 2014; 23 (6): 510–515. doi: https://doi.org/10.4037/ajcc2014399
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