With the greater focus on patient- and family-centered health care, family caregivers have emerged as essential members of the care team. Family caregivers report positive experiences, but the demands of the role can harm their health. For example, symptoms of caregiver burden, anxiety, depression, fatigue, and posttraumatic stress disorder are alarmingly prevalent among caregivers of critical illness survivors. This cluster of symptoms is included under post– intensive care syndrome–family (PICS-F) and is associated with mortality among caregivers and care recipients. Yet interventions for PICS-F symptoms have shown inconsistent benefits, indicating that our understanding of family caregivers’ needs across the post–intensive care unit (ICU) continuum may be inadequate. Notably, prior studies have not integrated caregivers’ perspectives with those of relevant stakeholders across the care continuum, nor have they examined how social determinants of health (SDOH) influence such perspectives. Furthermore, it is unclear how more general models of family caregiving correspond to...

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