Background

Families’ experiences in the hospital influence their decisions about donating organs of brain-dead relatives. Meeting families’ support needs during this traumatic time is an obligation and a challenge for critical care staff.

Objectives

(1) To elicit family members’ accounts of various types of support received and perceived quality of care for themselves and their loved ones when they made the donation decision, and (2) to examine the relationship between these factors and the families’ donation decision.

Methods

Retrospective telephone interviews of 199 families from different regions of the country were completed. Aside from demographic data, the survey addressed perceptions of informational, emotional, and instrumental support and quality of care.

Results

One hundred fifty-four study participants consented to donation; 45 declined. White next of kin were significantly more likely than African Americans to consent. Specific elements of reported support were significantly associated with consent to donate. Donor and nondonor families had differing perceptions of quality care for themselves and their loved ones. Receiving understandable information about organ donation was the strongest predictor of consent.

Conclusions

Specific supportive behaviors by staff as recounted by family members of potential donors were significantly associated with consent to donation. These behaviors lend themselves to creative training and educational programs for staff. Such interventions are essential not only for next of kin of brain-dead patients, but also for staff and ultimately for the public as a whole.

Notice to CE enrollees

1. Identify at least 2 types of information that family members found to be helpful when considering organ donation for a brain-dead relative.

2. Describe bereavement care.

3. Discuss at least 3 reasons why relatives did not consent to donation for their loved ones.

To read this article and take the CE test online, visit www.ajcconline.org and click “CE Articles in This Issue.” No CE test fee for AACN members.

Research undertaken during the 1990s on the effects of families’ hospital experiences on their decisions about organ donation for a relative generated compelling evidence regarding the significance of families’ satisfaction with hospital care, their understanding of brain death, and the timing of the donation request (decoupling).15  Results of research since 2000 have largely supported these findings and provided new insights, such as the importance of families’ being given time to bring up concerns with staff, receiving clear information about their relatives’ condition and the organ donation process, not being pressured to make a decision, and being shown respect and compassion.612

Also emerging from this research is evidence regarding the emotional experiences of next of kin in relation to their donation decision. Based on their extensive research with donor and nondonor families in the United Kingdom, Long, Sque and colleagues1316  describe how the emotional upheaval for acutely bereaved families and the lack of clarity regarding brain death while faced with the image of their relative “breathing” engendered dissonance and distress that adversely affected families’ decision making and complicated their grieving over time. Research in other countries has produced similar findings.17,18  Research with donor and nondonor next of kin in the United States has cited, among a number of reasons for not donating, emotional exhaustion and inadequate staff sensitivity and compassion to address families’ suffering.1921

Reasons for not donating include emotional exhaustion and inadequate staff sensitivity and compassion.

The option of organ donation is a topic in discussions about end-of-life care between hospital staff and patients’ families. As such, physicians and nurses, especially in critical care settings, play vital roles in communicating with and supporting families of potential organ donors.2227  Evidence suggests that critical care nurses may experience emotional and moral distress when simultaneously caring for brain-dead patients and their grieving families.2832  Thus, the decision-making process not only is emotionally wrenching for next of kin of eligible organ donors but may also constitute a precarious time for nursing staff, who are presented with exceptionally difficult demands.

Although existing research often refers to the needs of patients’ families for “support” and to their “perceived quality of hospital care” in relation to their donation decision, little attention has been given to families’ perceptions of the particular nature and elements of supportive behaviors and quality care. In order to optimally serve family members during their crisis, as well as aid nursing staff with their demanding obligations, it is essential for staff to have a more nuanced understanding of families’ support needs and of what “quality of care” in these unique situations entails than what current evidence provides. Furthermore, such information is warranted if it can bring to light modifiable ways of increasing rates of consent for organ donation. Toward this end, focus groups and a survey were undertaken with donor and nondonor family members to gain insights into their perceptions of various aspects of support and quality of care during the donation approach and decision-making processes. This article describes findings from the survey; focus group results are reported elsewhere.11

The aims of the survey were twofold: (1) to elicit family members’ accounts of various types of support received and their perceived quality of care for themselves and their loved ones during the time they made the donation decision and (2) to examine the relationship between those factors and the families’ decision about organ donation.

### Characteristics of the Deceased

Age of the deceased ranged from 1 month to 89 years, with a mean (SD) of 39.3 (19.4) years. Most were between 45 and 54 years of age. Slightly more than half (55.3%, n = 110) were males. Racial/ethnic background corresponded to that of the next of kin. Ninety-eight percent (n = 195) had been hospitalized in an intensive/critical care unit. Length of stay varied from less than 1 day to 28 days, with a mean (SD) of 3.4 (9.4) days. Age was the only characteristic that differed significantly with respect to the deceased’s donation status: donors were younger than nondonors (Table 2).

### Comparisons of Donor and Nondonor Next of Kin

#### Families’ Donation Decision

As noted earlier, a total of 77.4% (n = 154) of the respondents agreed to donate their relative’s organs. Whether consent was given or not, the primary decision maker was most often a parent (45.7%, n = 91), followed by a spouse (31.7%, n = 63), a child (12.6%, n = 25), and a sibling (10.1%, n = 20).

#### Demographic Background

Demographically, donor and nondonor respondents differed only with respect to racial background. Among those who consented, 85.9% (n = 128) were white, 11.4% (n = 17) were African American, and 2.7% (n = 4) represented other racial/ethnic groups. (Data on racial/ethnic background were missing for 7 participants; Figure 1).

#### Families’ Perceptions of Their Decision

Donor and nondonor families differed significantly in their perceptions of how difficult their decision had been, with 60.4% (n = 93) of donors and 42.2% (n = 19) of nondonors stating that the decision had not been difficult at all (χ2 = 9.7; P = .02). Conversely, 11.0% (n = 17) of those who consented to donation and 26.7% (n = 12) of those who declined described their decision as “very difficult.” Asked if they would make the same decision again, donor and nondonor next of kin also differed considerably in that 90.3% (n = 139) of donors compared with 57.8% (n = 26) of nondonors answered affirmatively (Figure 2). Nondonors were not only more likely to regret their decision but also expressed more uncertainty about the decision they had made.

#### Wishes of the Deceased

Almost half of the respondents (48.2%, n = 96) reported that their loved one had talked about organ donation sometime during their lives. This variable did not affect the families’ decision. Of the entire sample, 14.6% (n = 29) were aware that their relatives had formally stated their donation wish by signing a donor card, their driver’s license, or signing up on a donor registry. Families were more likely to consent to donation when their relative had already formally expressed his or her wish. The same applied when families did not know if their loved ones had stated such wishes (Table 2). Wishes of the deceased were included as a variable in the logistic regression analysis.

#### Perceived Emotional Support

Several questions were asked regarding respondents’ accounts of specific aspects of emotional support. Five items were of particular interest, with more than 50% of participants giving positive answers: (1) a staff member or volunteer was present who showed understanding of what they were going through (85.9%, n = 171); (2) a staff member or volunteer was there in case they needed them (83.9%, n = 167); (3) someone was present who listened to them (78.9%, n = 157); (4) a staff member or volunteer let them know that their feelings were normal (68.7%, n = 136); and (5) a volunteer or staff member gave them hope that they could go on (54.8%, n=109). A comparison of donors and nondonors on these support elements showed that significantly higher proportions of donor family members recounted having had someone present who showed understanding, who listened, who was there in case of need, and who gave them hope to go on (Table 3). Differences between donors and nondonors with respect to someone having let them know that their feelings were normal approached statistical significance (P = .05).

The 5 emotional support items were averaged to yield an overall index of emotional support for the logistic regression analyses. The items had an alpha coefficient indexing internal consistency of 0.70.

#### Perceived Instrumental Support

Instrumental support was assessed by means of the following 2 items: (1) physical necessities in terms of being provided with blankets, shower facilities, or toiletries and (2) food and/or drinks. Significant differences based on donor status were found in the area of physical necessities, with 62.3% (n = 96) of donors vs 40.0% (n = 18) of nondonors responding that they had been given such support (Table 3). No differences were found between groups with respect to being provided with nutritional items.

The physical comfort items showed a correlation of 0.30 (based on a phi coefficient) and were averaged to form an index of instrumental support.

#### Perceived Informational Support

At first, 2 general questions were asked of families regarding informational support: whether they were informed about the status of their loved ones and what to expect related to treatments and/or prognosis, and whether someone had been available to ask questions of hospital and/or OPO staff for them. In response to the former, 87.4% (n = 174) of the respondents gave an affirmative answer. Having had a friend or relative present who asked questions of staff was mentioned by 39.7% (n = 79). These 2 variables were not significantly associated with the families’ donation decision.

Two key and specific elements of informational support were then assessed: information about brain death and information about organ donation.

Information About Brain Death: Notable differences based on donor status were found regarding information on brain death, with 79.2% (n = 122) of donors and 57.8% (n = 26) of nondonors stating the information had been “quite understandable,” and 73.4% (n = 113) vs 48.9% (n = 22) asserting they had been given adequate time to understand brain death before considering organ donation. On a scale of 1 = “not at all understandable,” 2 = “somewhat understandable,” and 3 = “quite understandable,” means were 2.76 for donors vs 2.47 for nondonors for understandability of the information and 2.68 for donors vs 2.07 for nondonors for having enough time to understand befre making a decision (Table 3). Although only 6.5% (n = 10) of consenting next of kin felt that the amount of time for decision making was “not at all adequate,” the corresponding proportion among nondonors was 42.2% (n = 19; χ2 = 35.4; P < .001).

The two informational support items had a correlation of 0.46 and were averaged to form a general index of provision of adequate information about brain death for the logistic regression analysis.

Information About Organ Donation: In response to the question regarding the adequacy of information about organ donation in order to make an informed decision and the extent to which this information was perceived as understandable, donors were significantly more likely than nondonors to report that the information had been adequate and understandable. Proportions were 90.0% (n = 137) for donors vs 42.2% (n = 19) for nondonors and 90.3% (n = 139) for donors vs 42.2% (n = 19) for nondonors, respectively. Mean scores (range = 1–3) were 2.91 for donors vs 2.22 for nondonors for understandability of the information and 2.85 for donors vs 2.07 for nondonors for having been given adequate information to make an informed decision (Table 3).

The 2 informational items showed a correlation of 0.77 and were averaged to form an index of provision of adequate information about organ donation for the logistic regression analyses.

#### Perceived Quality of Care for Loved One and for Family

Families’ perceptions of quality of care for their loved ones was assessed by the extent to which they felt that the patient was treated with compassion, dignity, and respect. Donor and nondonor family members differed significantly in their perceptions of compassionate care for their relatives. On a scale of 1 to 4 (with 4 being the most positive rating), mean scores were 3.81 for donor family members and 3.53 for nondonor family members (Table 3). Perceptions of the deceased having been treated with dignity and respect did not differ significantly according to the donation decision.

With regard to quality of care for themselves, family members who consented to donation more commonly felt that they had been treated with dignity and respect (means = 3.78 for donor family members vs 3.49 for nondonor family members) and that their religious/spiritual beliefs were respected (means = 3.72 for donor family members vs 3.40 for nondonor family members; Table 3). The 4 quality-of-care items were averaged to yield an overall index of perceived quality of care, yielding an alpha coefficient of 0.87.

### Logistic Regression Analyses

Table 4 presents intercorrelations between the 3 dimensions of support and the donation decision. The correlations reported are point biserial correlations. All of the support dimensions were significantly correlated with the donation decision. Informational support about organ donation had the highest correlation (r = 0.55, P = .01), followed by informational support about brain death (r = 0.35, P = .01), emotional support (r = 0.29, P = .01) and instrumental support (r = 0.19, P = .01). When the variables were entered simultaneously into the logistic regression with the demographic (characteristics of respondents and the deceased), and hospital covariates, only informational support about organ donation yielded a statistically significant logistic coefficient (coefficient = 2.68, exponent of coefficient = 14.61, 95% confidence interval of exponent = 5.14–41.51).

To further elucidate this relationship, we calculated observed conditional probabilities of consent to donate as a function of informational support about organ donation (scale range = 1–3) by computing the proportion of respondents who consented to donate at a given score on the informational support scale. For those with a score of 1 (n = 9), the proportion donating was 0%; for those with a score of 1.5 (n = 11), the proportion was 45%; for those with a score of 2.0 (n=14), the proportion was 29%; for those with a score of 2.5 (n = 17), the proportion was 82%; and for those with a score of 3.0 (n = 148), the proportion was 89%. The data indicate a dramatic decrease in decisions to donate at scores less than 2.5. Perceived quality of care and the known prior wishes of the deceased to be a donor did not yield statistically significant logistic regression coefficients.

Families who are approached about organ donation for their relatives have to make their decision during profoundly stressful circumstances. Findings from this study advance our understanding of families’ experiences with and perceptions of particular elements of emotional, informational, and instrumental support and quality of care during these traumatic circumstances. Moreover, the analysis illuminates the association between the particular aspects of support and quality of care on the one hand and the families’ decision about donation on the other.

Nondonors were more likely than donors to regret their decision.

Meeting families’ support needs during the donation decision-making process is a challenge as well as an obligation for staff caring for eligible organ donors. Yet critical care practitioners often have inadequate communication skills and knowledge related to organ donation and brain death.22,29,35,36  As noted earlier, they may also have ambivalent feelings about such issues. In combination, these factors have the potential to influence staff confidence and comfort and, in turn, prevent them from providing effective support to families and from facilitating the decision-making process.

Our multivariate analysis showed that the strongest predictor of consent to donation is informational support about organ donation. Previous research has shown families’ emphasis on their desire that such factual information be conveyed with compassion and sensitivity, suggesting a convergence of informational and emotional support.11,13  The relationship between families’ consent, receiving understandable information about organ donation and brain death, and having been given sufficient time to make their decision mirrors the results of earlier research. The importance of family decision makers being provided with adequate informational support is underscored by longitudinal studies revealing that unanswered questions about aspects of the organ donation process complicated families’ grief.13,17

Family members who consented to donation more commonly felt that they had been treated with dignity and respect.

Regardless of their decision about donation, slightly more than one-third of participants reported having had a relative or friend act as a messenger between them and hospital or OPO staff. As Thelen37  notes, nurses often serve as the intermediaries between families and physicians in end-of-life situations. The importance of this nursing role is accentuated when the issue of organ donation requires information be added to end-of-life conversations with next of kin. Yet various constraints limit nurses in fulfilling this role on a continuing basis, necessitating the involvement of informal caregivers.

The notable differences found between donors and nondonors in the domain of emotional support related to 4 particular elements: having had someone there to listen to them, having had someone there to show understanding, having had someone there to give them hope to go on, and having had someone there just in case of need. As noted earlier, previous research has addressed the emotional turmoil experienced by families during the donation decision process. However, only 1 empirical study38  was found—and it was limited to parents of brain-dead children—that recommends particular staff behaviors that may address parents’ emotional needs. Such behaviors included giving parents the opportunity to be at their child’s bedside and to say goodbye. The authors’ other recommendations were stated in general terms related to providing emotional support and developing trusting relationships with patients’ families. Our findings move this area of inquiry forward by identifying more precise elements of emotional support and their association with consent to donation. Moreover, our findings bring into focus how hospital staff can respond optimally to families’ emotional needs and through that process facilitate the families’ decision making. Similarly, our results suggest that specific instrumental support in the form of physical comfort—also amenable to staff intervention—is associated with consent to donation.

The strongest predictor of consent to donation is informational support about organ donation.

The significant differences between donor and nondonor families’ perceptions of quality of care in terms of compassion, respect, and dignity for their loved ones and themselves warrant attention from the perspective of medical and nursing practice and education. How can these elements of quality of care translate into specific staff behaviors and be incorporated into skills training for relevant staff? We believe that principles of bereavement care—a central tenet of palliative care—are applicable in this context for staff training about providing support to families of brain-dead patients as well as support strategies for staff.39

Evaluation of the aforementioned differences between donor and nondonor families sheds light on the nature of the decision-making experience itself. Nondonors were considerably more likely to describe their decision as “very difficult” and to state that they would make a different decision if in the same situation again. They also tended to express more uncertainty about their decision. The latter findings, which are consistent with those of Rodrigue et al,40  highlight what may have been lost opportunities in obtaining consent from families and underscore the need for careful examination by OPO and hospital staff. Such examination should address strategies to reduce the potential for regrets and uncertainties among families by optimally meeting their needs for support.

Limitations of this study pertain to its retrospective nature, relying on respondents’ memory of past events. Respondents’ recall of events and facts may have been inaccurate. Another limitation is that nonrespondents could have differed from respondents on key background characteristics, thus weakening the generalizability of the study findings. Furthermore, the sample had limited racial and ethnic diversity. Another limitation pertains to the fact that some survey items were generated in a pilot study undertaken with mothers of donors only.

Our findings give us a deeper and more nuanced understanding of families’ experiences with support and quality of care and of the particular elements most predictive of consent to donation than was available from previous research. Gaining new insights into the “texture” of informational, emotional, and instrumental support and quality care helps us define modifiable elements of care that can be incorporated into professional educational programs. Innovative programs with simulated training and role playing constitute recent advances in this area.41,42  Such educational interventions must comprise components about support of and strategies for critical care nurses, in particular, to cope with the stress they may experience when caring for prospective organ donors and their families. We argue that such educational programs not only will benefit bereaved families facing the donation decision and critical care staff caring for them and their loved ones but, ultimately, will improve the health of the public as a whole through increased rates of organ donation and transplantation.

We extend our thanks to the survey participants for their courage and generosity and thank the interviewers for their skillful interviewing. We gratefully acknowledge the cooperation of the participating OPOs and the assistance of all project staff and volunteers who made the study possible.

1
DeJong
W
,
Franz
HG
,
Wolfe
SM
, et al
.
Requesting organ donation: an interview study of donor and non-donor families
.
Am J Crit Care
.
1998
;
7
(
1
):
13
23
.
2
Franz
HG
,
DeJong
W
,
Wolfe
SM
,
Payne
D
,
Reitsma
W
,
Beasley
C
.
Explaining brain death: a critical feature of donation
.
J Transpl Coord
.
1997
;
7
(
1
):
14
21
.
3
Gortmaker
SL
,
Beasley
CL
,
Sheehy
E
, et al
.
Improving the request process to increase family consent for organ donation
.
J Transpl Coord
.
1998
;
8
(
4
):
210
217
.
4
McNamara
P
,
Beasley
C
.
Determinants of familial consent to organ donation in the hospital setting
. In:
Cecka
PI
,
Terasaki
JM
, eds.
Clinical Transplants
.
Los Angeles, CA
:
UCLA Tissue Typing Laboratory
;
1997
:
219
229
.
5
Evanisko
MJ
,
Beasley
CL
,
Brigham
LE
, et al
.
Readiness of critical care physicians and nurses to handle requests for organ donation
.
Am J Crit Care
.
1998
;
7
(
1
):
4
12
.
6
Rodrigue
JR
,
Cornell
DL
,
Howard
RJ
.
Organ donation decision: comparison of donor and nondonor families
.
Am J Transplant
.
2006
;
6
:
190
198
.
7
Siminoff
LA
,
Gordon
N
,
Hewlett
J
,
Arnold
RM
.
Factors influencing families’ consent for donation of solid organs for transplantation
.
JAMA
.
2001
;
286
(
1
):
71
77
.
8
Siminoff
LA
,
Mercer
M
,
Arnold
R
.
Families’ understanding of brain death
.
Prog Transplant
.
2003
;
13
(
3
):
218
224
.
9
Rocheleau
C
.
Increasing family consent for organ donation: findings and challenges
.
Prog Transplant
.
2001
;
11
(
3
):
194
200
.
10
Siminoff
LA
,
Arnold
RM
,
Hewlett
J
.
The process of organ donation and its effect on consent
.
Clin Transplant
.
2001
;
15
:
39
47
.
11
Jacoby
L
,
Breitkopf
CR
,
Pease
E
.
A qualitative examination of the needs of families faced with the option of organ donation
.
Dimens Crit Care Nurs
.
2005
;
24
(
4
):
183
189
.
12
Long
T
,
Sque
M
,
J
.
What does a diagnosis of brain death mean to family members approached about organ donation? A review of the literature
.
Prog Transplant
.
2008
;
18
(
2
):
118
125
.
13
Sque
M
,
Long
T
,
Payne
S
.
Organ donation: key factors influencing families’ decision-making
.
Transplant Proc
.
2005
;
37
:
543
546
.
14
Long
T
,
Sque
M
,
J
.
Conflict rationalization: How family members cope with a diagnosis of brain stem death
.
Soc Sci Med
.
2008
;
67
:
253
261
.
15
Long
T
,
Sque
M
,
Payne
S
.
Information sharing: its impact on donor and nondonor families’ experiences in the hospital
.
Prog Transplant
.
2006
;
6
(
2
):
144
149
.
16
Sque
M
,
Payne
S
,
Macleod Clark
J
.
Gift of life or sacrifice?: key discourses to understanding organ donor families’ decision-making
.
Mortality
.
2006
;
11
(
2
):
117
132
.
17
Kesselring
A
,
Kainz
M
,
Kiss
A
.
Traumatic memories of relatives regarding brain death, request for organ donation and interactions with professionals in the ICU
.
Am J Transplant
.
2007
;
7
:
211
217
.
18
Macdonald
ME
,
Liben
S
,
Cohen
RS
.
Signs of life and signs of death: brain death and other mixed messages at the end of life
.
J Child Health Care
.
2008
;
12
(
2
):
92
105
.
19
Exley
M
,
White
N
,
Martin
J
.
Why families say no to organ donation
.
Crit Care Nurse
.
2002
;
22
(
6
):
44
51
.
20
Rodrigue
JR
,
Cornell
DL
,
Howard
RJ
.
Pediatric organ donation: what factors most influence parents’ donation decisions?
Pediatr Crit Care Med
.
2008
;
9
(
2
):
180
185
.
21
Siminoff
LA
,
Mercer
MB
,
Graham
G
,
Burant
C
.
The reasons families donate organs for transplantation: implications for policy and practice
.
J Trauma
.
2007
;
62
:
969
978
.
22
Williams
MA
,
Lipsett
LA
,
Rushton
CH
, et al
.
The physician’s role in discussing organ donation with families
.
Crit Care Med
.
2003
;
31
(
5
):
1568
1573
.
23
Aulisio
M
,
DeVita
M
,
Luebke
D
.
Taking values seriously: ethical challenges in organ donation and transplantation for critical care professionals
.
Crit Care Med
.
2007
;
35
(
2suppl
):
S95
S101
.
24
Daly
BJ
.
End-of-life decision making, organ donation, and critical care nurses
.
Crit Care Nurse
.
2006
;
26
(
2
):
78
86
.
25
McCoy
J
,
Argue
PA
.
The role of critical care nurses in organ donation: a case study
.
Crit Care Nurse
.
1999
;
19
(
2
):
48
52
.
26
Ingram
J
,
Buckner
E
,
Rayburn
A
.
Critical care nurses’ attitudes and knowledge related to organ donation
.
Dimens Crit Care Nurs
.
2002
;
21
(
6
):
1
8
.
27
Phillips Riley
L
,
Coolican
MB
.
Needs of families of organ donors: facing death and life
.
Crit Care Nurse
.
1999
;
19
(
2
):
53
59
.
28
Sque
M
,
Payne
S
,
Vlachonikolis
I
.
Cadaveric donor transplantation: nurses’ attitudes, knowledge and behavior
.
Soc Sci Med
.
2000
;
50
:
541
552
.
29
Elpern
EH
,
Covert
B
,
Kleinpell
R
.
Moral distress of staff nurses in a medical intensive care unit
.
Am J Crit Care
.
2005
;
14
(
6
):
523
530
.
30
Dodd-McCue
D
,
Tartaglia
A
,
Veazey
K
,
Streetman
P
.
The impact of protocol on nurses’ role stress
.
.
2005
;
35
(
4
):
205
216
.
31
Pearson
A
,
Robertson-Malt
S
,
Walsh
K
,
Fitzgerald
M
.
Intensive care nurses’ experiences of caring for brain dead organ donor patients
.
J Clin Nurs
.
2001
;
10
:
132
139
.
32
Day
L
.
How nurses shift from care of a brain-injured patient to maintenance of a brain-dead organ donor
.
Am J Crit Care
.
2001
;
10
(
3
):
306
312
.
33
Heany
CA
,
Israel
BA
.
Social networks and social support
. In:
Glanz
K
,
Rimer
BK
,
Lewis
FM
, eds.
Health Behavior and Health Education: Theory, Research and Practice
. 3rd ed.
San Francisco, CA
:
Jossey-Bass
;
2002
.
34
RTI International
.
. . Accessed June 9, 2010.
35
DuBois
J
,
Anderson
E
.
Attitudes toward death criteria and organ donation among healthcare personnel and the general public
.
Prog Transplant
.
2006
;
16
:
65
73
.
36
Collins
T
.
Organ and tissue donation: a survey of nurse’s knowledge and educational needs in an adult ITU
.
Intensive Crit Care Nurs
.
2005
;
21
:
226
233
.
37
Thelen
M
.
End-of-life decision making in intensive care
.
Crit Care Nurse
.
2005
;
25
(
6
):
28
37
.
38
Bellali
T
,
Papazaglou
I
,
D
.
Empirically based recommendations to support parents facing the dilemma of paediatric cadaver organ donation
.
Intensive Crit Care Nurs
.
2007
;
23
:
216
225
.
39
Lloyd-Williams
M
,
Morton
J
,
Peters
S
.
The end-of-life care experiences of relatives of brain dead intensive care patients
.
J Pain Symptom Manage
.
2009
;
37
(
4
):
659
664
.
40
Rodrigue
JR
,
Cornell
DL
,
Howard
RJ
.
The instability of organ donation decisions by next-of-kin and factors that predict it
.
Am J Transpl
.
2008
;
8
:
2661
2667
.
41
Williams
MA
,
Lipsett
LA
,
Shatzer
JH
, et al
.
Experiential, interdisciplinary training in end-of-life care and organ donation [abstract]
.
Crit Care Med
.
2001
;
28
(
suppl
):
A204
.
42
Jacoby
L
,
Crosier
V
,
Pohl
H
.
Providing support to families considering the option of organ donation: an innovative training method
.
Prog Transplant
.
2006
;
16
(
3
):
247
252
.

## Footnotes

FINANCIAL DISCLOSURES

This study was supported by grants 1 H39 OT 00007 and 1 H39 OT 00119 from the Office of Special Programs, Division of Transplantation, Health Resources and Services Administration, US Department of Health and Human Services.

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