Scope of the Problem
To be competent in acute care, nurses must possess the knowledge, skills, and abilities to manage rapidly changing patient events.1 Family presence (FP) is a recognized autonomous nursing intervention,2 whereby nurses facilitate the attendance of family members during resuscitation or an invasive procedure in a patient care location that affords visual or physical contact with the patient. Family presence is an option guided by the patient- and family-centered care model. It is beneficial to patients and families3 and historically has not interfered with care.4 The COVID-19 pandemic dictated widespread visitation restrictions that banned families from acute care units, with their absence quickly becoming the norm.5–7 However, the COVID-19 public health emergency ended in May 2023. The pandemic-era FP guidance should not be considered the new standard of care. Family presence should be reestablished to reflect a culture of patient- and family-centered care and safety for all those in need of family support during vulnerable health events. Nurse leaders support FP through collaboration with the clinical team, education, and policy development and modification as contemporary societal issues arise.
Expected Practice
Establish whom the patient identifies as “family” and ask whether FP during resuscitation or procedures is desired. [level C/D/E]
Assess the family for safety concerns and appropriateness for being present during resuscitation or procedures. [level B/C/D/E]
Explain the responsibilities of the health care team to the patient and family and what to expect during procedures, including potential noises, smells, and sounds. Provide a safe space for the family that will not interrupt care and, if possible, include a staff person (eg, social worker, chaplain) who will act as an FP facilitator (FPF).
Reevaluate patient wishes throughout the hospitalization along with safety for staff and family members.
Facilitate FP at the bedside for patients undergoing resuscitation or invasive procedures when congruent with patient and family preferences. [level A]
Before the Event
Upon hospital admission, assess whom the patient identifies as “family” and determine the patient’s wishes for FP during resuscitation or invasive procedures should they occur. [level C/D/E]
If the patient is nonverbal on admission: Follow hospital protocols for family identification and have your social worker, case manager, chaplain, or house supervisor help determine who should be designated as family.
If families want to be present: Speak with the family as soon as possible and assess the family for appropriate behavior and level of coping to ensure uninterrupted care. [level C/D]
Contraindications for FP include combative or violent behaviors, uncontrolled emotional outbursts or extreme emotional instability, or behaviors consistent with an altered mental state due to use of behavior-modifying substances. [level B/C/D]
Use existing visitor policies and chain of command to promote safe clinical practice environments; offer FP as an option (not an expectation) to the family if aligned with patient preferences and acceptable to the health care provider (HCP) team. Explain that uninterrupted patient care is the priority and FP must not interfere with patient care. [level B/C/D/E]
Throughout the patient’s admission, reassess appropriateness for FP by assessing the family for suitable behavior and level of coping to ensure uninterrupted patient care. [level B/C/D/E]
Consult with the HCP team about FP before the event to establish consensus for proceeding with FP. [level C/D/E]
For families who will be present: Prepare the family for being at the bedside, including the status of the patient, interventions and procedures in progress, appropriate personal protective equipment needed, sights and sounds they can expect to encounter, number of family members who can be in the room, why they may be asked to leave the room, and assurance that they can step out and reenter the room at any time. [level D/E]
For families who will not be present: Identify which staff member will support them and provide regular updates about the patient. [level B/C/D]
During the Event
Inform the team of family arrival in the patient’s room. If possible, identify an FPF to assist with FP. Support and prepare the family throughout the event. [level D/E]
Explain procedures, interventions, and medical jargon.
Encourage the family to ask questions and relay important patient health information as needed. Interpret the patient’s clinical status, response to interventions, and possible expected outcomes. [level B/C/D/E]
Provide opportunities for the family to see, touch, or speak to the patient as appropriate. [level C]
Continue to reassess the family’s response to the event and level of coping and watch for signs of untoward reactions. Terminate FP if appropriate upon HCP request or because of family member interference with care. [level C/E]
After the Event
Escort the family to a comfortable area and address psychosocial needs and concerns, provide comfort measures, and debrief the family.
Ensure opportunities for the family to see and speak to the patient.
If death occurs, use understandable language, explain the care provided, prepare the family for what to expect, facilitate viewing of the body, and initiate a family bereavement follow-up program. [level D]
Document the FP event and debrief with the team.
Supporting Evidence
Before the Event
As part of the admission process, assess whom the patient identifies as “family,” and determine their wishes for FP during an invasive procedure or resuscitation should it occur.8 The family should be assessed for FP appropriateness by observing for suitable behavior and level of coping to ensure uninterrupted patient care.9–17 Contraindications for FP include emotional instability, combativeness, and violent behaviors as well as behaviors reflecting altered mental states due to use of drugs or alcohol.4,9–12,14–19
If FP is assessed as appropriate, consult with the HCP team before proceeding.10,11 If it is acceptable to the team, offer FP as an option to the family when aligned with patient preferences.10–12,14–17,19–25 For families who choose not to be present, identify who on the team will support them by providing regular status updates.4,11,17,26
If families want to be present, reassess family coping and behavior for appropriateness to ensure uninterrupted care.11,23,27 Prepare the family for being at the bedside, including the current status of their loved one, interventions and procedures in progress, sights and sounds they can expect to encounter, number of family members who can be in the room,4,10,11 why they may be asked to leave the room, and assurance that they can step out and reenter the room at any time.11 Use understandable language and offer supportive comfort measures.
During the Event
Inform the team when the family arrives in the patient’s room.28 Remain with the family at all times,10,11 providing continued support.9,11,12,14–18,23,26,27,29–32 Explain procedures, interventions, and medical jargon to the family, and interpret the patient’s clinical status, response to interventions, and possible expected outcomes.10,11 Provide opportunities for the family to see, touch, or speak to the patient as appropriate.13 Encourage the family to ask questions and relay important information as needed. Continue to reassess the family’s response to the event and level of coping and watch for signs of untoward reactions.27 Terminate FP if appropriate upon HCP request or because of interference with care, for example, violent or disruptive behavior, uncontrolled outbursts, extreme emotional distress.10,25,33,34
After the Event
Escort the family to a comfortable area. Address psychosocial needs and concerns, provide comfort measures, and debrief the family. Ensure opportunities for the family to see and speak with the patient. If death occurs, use understandable language, explain the care provided, prepare the family for what to expect, facilitate viewing of the body, and initiate a family bereavement follow-up program.11 Document the FP event and debrief with the team.
Organizational Support Systems for Facilitating FP
Unit Leadership
Clinical leadership is essential to supporting bedside nurses and facilitating FP. Nurse leaders can foster a clinical environment that supports FP by developing FP champions, educational opportunities, FPFs, and policies that empower nurses at the bedside to be prepared and confident to provide FP. Nurse leaders can facilitate FP skills of new-to-practice nurses through mentorship with more experienced nurses. They can also guide new nurses to connect families with appropriate FP resources, such as hospital social workers, chaplains, or other support systems.
Create an interprofessional FP champion team from a variety of disciplines and management composed of people who have the passion, knowledge, and commitment to initiate, motivate, and sustain change. Early involvement of the interprofessional team is essential to establish an FP program.11
Identify who should be invited to be part of the champion team (eg, bedside care providers, clinical leaders, physicians, clinical educators, social workers, pastoral care providers, respiratory care providers, child-life specialists, and patient/family advisors).11
Review the science on FP’s effect on patient outcomes and intervention outcomes with the FP champions. Namely, FP is associated with improved communication with patients’ family members, medical decision-making, and patient care.15,16 Multiple studies on FP intervention outcomes also consistently demonstrate that FP does not increase
Review professional organizations supporting implementation of FP in acute care units with FP champions. Consensus conferences, position and policy statements, and clinical practice guidelines (CPGs) are shown in Table 1.
Although the COVID-19 public health emergency ended in May 2023, it ushered in some changes that remain useful, such as innovations related to allowing family to be present through videoconferencing (“nonphysical family presence”).60,61 Some examples of guidance for FP during a pandemic issued by professional organizations include
Explore HCPs’ concerns via assessment of staff attitudes, beliefs, and individual FP practices.11,13 Not only can identifying such concerns at your hospital help raise awareness, but suggestions can also be incorporated into your FP program.64 A number of validated tools are available to assess HCP attitudes, beliefs, and self-confidence in your population and organization (Table 2).65–69
Regularly review and update visitation policies that may impact FP.
Education
Conduct an educational needs assessment11 to determine FP knowledge needs of each discipline, as well as the whole interprofessional team.
Key topics recommended for educational content include
Principles of patient- and family-centered care
Grief and loss responses
Documented patient and clinical interventions outcomes associated with FP
HCP concerns about implementing FP for patients and family members
Consensus conferences, position and policy statements, or CPGs from professional organizations in support of FP during resuscitation and invasive procedures
Evidence of the benefits of FP for patients, family members, and HCPs
Patient Benefits and Concerns
Research and public opinion polls indicate that most patients and families believe that family members should be offered the opportunity to be present during invasive procedures and at the time of their loved one’s death.22–24,47,52,70–81
Specifically, patients believe that FP is beneficial and is their right.82–84 Almost all children want their parents present.41,85 The majority of adult patients want family members to be present during emergency procedures8,83 and are helped and comforted by having them there.8,46,72,74,75,82 Patients believe that FP humanizes patients in the eyes of HCPs, is a shared experience with family, and maintains patient-family connectedness.82 Patients also believe that FP allows family members to see that everything possible was done, receive timely information, cope better, and experience closure.24,33,83,86 Patients, however, also believe that they should be the decision-maker regarding who is present and give consent before the event, if possible.8 Moreover, they have voiced concern about potential family distress82 and distraction for providers.8,83
Family Member Benefits and Concerns
More research has focused on the experiences of family members during FP than on those of patients. Robust evidence demonstrates that most, but not all, families want to be present for their loved one’s invasive procedures and resuscitation. Additionally, most research demonstrates that FP is beneficial for families.22,34,56,87,88 If given the option of FP, most family members would choose to be there56,89,90 and experience high satisfaction with their ability to decide whether to be present.89 Also, most family members believe that being present is their right, duty, and obligation and the appropriate thing to do.14,15,22–24,56,88–92
Families relate that their presence enables them to understand the severity of their loved one’s condition and helps remove doubt about the patient’s condition by witnessing that everything possible is being done.14,15,36,39,42,43,46,47,56,90–95 Being there meets the families’ need to be together and have the opportunity to advocate for, comfort, and protect their loved one.14,15,35,36,43,44,56,92,96 Families believe that FP is helpful to the patient and themselves14,15,35,79,90,91 and allows them to experience a sense of closure and facilitates the grieving process should death occur.39,43,46,47,72,73,92,95,96
Although family members demonstrate a range of distress related to emergency procedures, being present decreases family members’ fear and distress about what is happening and provides a means to communicate essential patient health information to the health care team.14,24,33,41,86,90,93,96–98 Moreover, no adverse psychological effects are reported among family members who participate in FP compared with families who do not.14,15,33,36,44,46,92,94,99–101 In a Cochrane review of the effects of FP on posttraumatic stress and other psychological outcomes of family members, in which 3 randomized controlled trials were evaluated, the authors reported that there was not enough evidence to formulate conclusions about the effects on any of the outcomes evaluated.102 However, several studies have demonstrated positive family outcomes resulting from FP. Some have shown that families who are present have significantly reduced stress, anxiety, and depression79 and greater well-being regarding the care provided compared with families who are not present.38 Others have shown a lower frequency of signs and symptoms of posttraumatic stress syndrome, depression, and traumatic grief in families present during resuscitation at both 3 months and 1 year after the event, with no lawsuits regarding the care provided filed in this group.44,100 One compelling finding was that 94% to 100% of families would choose to be present again in the future.14,15,26,33,35,36,39,72,90,96
Nurse and HCP Benefits and Concerns
Health care providers agree that family members should be supported to be present if they so desire.3,103,104 They believe that FP helps families understand the extent of care provided and that everything possible was done for the patient, as well as assists families with the grieving process and achieving a sense of closure in case of death.3,103 They also believe that physicians should not be solely responsible for deciding if family members should be present.3
Sociocultural, environmental, and individual factors affect perceptions of FP among HCPs.34,105 Greater confidence in and more support for FP have been documented in providers with higher levels of education and certification in their specialty, greater clinical and intensive care unit experience or mock code training, and experience with FP, FP policies, and FP education, as well as among those who have previously invited families to be present.56,79,106–109
Health care providers have concerns about FP. Some HCPs are concerned that FP might interfere with patient care or affect the team’s concentration during resuscitation,3,56,103,108,110 delay interventions, or prolong the resuscitation.110 Some fear potential litigation because of family misunderstandings during emergent procedures.3,56 Moreover, HCPs are concerned that FP may be a traumatic experience for families3,22,103 and cause distress for both families and HCPs.56,103,110 Health care providers also worry about not respecting the patient’s wishes if FP was not previously discussed with them, as well as not meeting family needs in terms of their education level, culture, and religion.3,110
Barriers to FP voiced by HCPs include the lack of physical room for the family,103,108,109,111 a clear FP policy,20,103,108,109 a designated FPF,3,20,33,103,110 and support from both leadership and other members of the resuscitation team.109,110
Educate all interprofessional team members who will be involved with FP.18,20,26,29,31,32,56,72,91,112–114 In preparing educational opportunities, recognize how environmental and sociocultural factors and HCP opinions and attitudes toward FP will affect acceptance and implementation success.34,105 For instance, some HCPs may be hesitant to embrace FP to protect families from what they perceive as potential psychological trauma, as well as because of the potential for distractions and concerns that families will not understand what is occurring.22 Awareness of these factors is crucial for launching a successful educational campaign.
Use an array of educational strategies to heighten awareness, influence attitudes, and build FP knowledge among HCPs. Nurses report a desire for a variety of educational approaches to learn about FP.115 Furthermore, until more robust FP research22,24,110,113 illuminates which interprofessional educational approaches are most effective in promoting positive FP attitudes, beliefs, and practices, incorporate a variety of modalities, including
Just-in-time learning platforms, QR codes, huddle discussions, unit meeting in-service programs
Posting educational information in secure staff common areas with an opportunity for team members to ask questions and address ongoing educational needs
Lecture and discussion
Guest speakers
Patients and family members who can share their FP stories116
Leaders from other organizations with successful FP programs
Self-paced modules and articles
Online education, which shows promise in improving nurses’ perceptions of and confidence regarding FP and thus has potential in assisting widespread adoption117
Personal values clarification exercises h. Education and training videos
Role-playing exercises or use of simulation in which staff members assume the roles of patient and family member during a critical event113,114,116
Resuscitation and invasive procedure simulations
Case reviews
Embed FP education into orientation and establish competency standards52 for all staff members involved in FP to ensure patient, family, and staff safety. During the initial implementation of an FP program in your institution, develop competency statements for each member of the interprofessional team who may play a role in FP during resuscitation or invasive procedures. Staff members can also be assigned annual competency review of the FP policy and specific roles of the interprofessional team and FPF to ensure that all team members have refresher education about their important roles in supporting patients and families.
Create additional opportunities for formal and informal discussions to assist the team in sharing evidence, experiences, perspectives, and opposing viewpoints that can ready the culture for FP during resuscitation and invasive procedures. Such conversations help identify staff and team sentiments, potential roadblocks, additional educational needs, and issues to incorporate into FP guidelines and implementation plans. These formal and informal opportunities might include
Unit huddles
Evidence-based practice rounds
Staff meetings
In-service programs
Journal clubs
Ethics conferences
Shared governance council meetings
Open team forums
Host grand rounds on FP during resuscitation and invasive procedures. Invite the interprofessional team to hear experts summarize the current state of the science, as well as discuss case studies of successful FP events and patient/family testimonials.
Post current patient- and family-centered care and FP research articles on unit bulletin boards and websites and in the nurse’s station and team rooms on a regular basis.
Family Presence Facilitators
Best practice suggests that FPFs play a pivotal role in protecting the safety of the patient, family, and HCPs and facilitating patient and clinical intervention outcomes during FP. Most importantly, FPFs safeguard the guiding principle of FP by ensuring that no disruptions or interference with patient care will occur. Thus, when resources are available, educate a team of FPFs to ensure that resuscitation efforts are viewed as successful by the family and health care team, whether the patient survives or not.23,115
The FPF should be a core member of the resuscitation team21,33,34 and needs to be identified as early as possible during an emergency event.22,33 Team members who serve as the FPF have an additional specialized role. Ideally, the FPF should not directly participate in the resuscitation but instead should be designated to support families during such events. A training session for educating the FPF has been described, including FPF roles and responsibilities, curricular content, an FPF flow chart, and a documentation template.118 Significant increases in all rated aspects of knowledge of the family support role and self-care strategies were reported. Teach FPFs how to assess, communicate with, prepare, and support family members who may choose to be present during an invasive procedure or resuscitation event, as well as approaches to dealing with families who are in distress.27,118,119 Use a variety of educational methods to develop FPF skills, such as self-paced study, lecture and discussion, role playing, and simulation of case studies.
The FP policy or CPG should delineate who can serve in this role, although no evidence exists to indicate which HCPs are best qualified to do so.23,120 A cadre of team members—such as bedside care providers, nurse leaders/managers/supervisors, clinical nurse specialists, social workers, physicians, chaplains, child-life specialists, respiratory care practitioners, family therapists, or nursing students—should be trained in the FPF role.4,9,11,17,23,26,30,120–123 The American Heart Association recommends that FP be permitted during pediatric resuscitation even if an FPF is not available.25 Others recommend that FP not be offered without an FPF,4 although FP rarely begins in hospitals with a formal program, education, policies, and trained family support facilitators.
Acute care nurses report that the FPF role is difficult but rewarding. The complex, multifaceted role involves being fully present and compassionately attentive to families in addition to continuously assessing family members; coordinating the first moments during the FP event; explaining resuscitation activities in simple, tailored terminology; and providing emotional and psychological support.27
Create an FP Practice Protocol or Policy
Institutional FP policies provide a sanctioned road map for facilitating FP in clinical practice. Written, approved FP policies or CPGs protect the safety of the patient, family, and health care team by ensuring that FP implementation is evidence based, supported, and accepted by the interprofessional team and offered equitably to family members of critically ill patients undergoing invasive procedures and resuscitation.
Family presence education and policies or CPGs are recommended by many professional organizations, consensus conferences, and joint position and policy statements.4,11,19–21,25,31,51–53,55,56,58,59,124 Professional organizations supporting FP implementation are shown in Table 1.
Institutional FP policies or CPGs are needed to guide clinical practice. In one study, education increased HCPs’ awareness of and compliance with FP policies.64 Similarly, Powers and Reeve107 found that FP education for nurses and an FP policy or CPG were associated with greater confidence in the FP intervention and increased invitations extended to families to be present.
Recent literature clearly indicates that institutional FP policies are not widespread21 and yet FP commonly occurs in clinical practice. Health care providers have expressed concerns and hesitation about implementing FP because they lack FP policies and support from the interprofessional team.103,109,110 Bedside care providers may not be aware that an FP policy or CPG exists in their institution.110 In a national survey of critical care nurses in the United States (n = 395), most respondents reported either not having or not knowing of an institutional policy on FP during resuscitation, but the majority had experienced FP.110 Another national study found that only about one-third of 252 hospitals had FP policies.40 Other surveys of critical care nurses’ practice indicate that many, if not most, patients’ families have asked if they could be present during resuscitation and invasive procedures and were brought to the bedside despite the lack of formal policies.69,125
Develop institutional, evidence-based FP policies or CPGs by using or adapting existing policy guidelines as a template4,10,11,13,19,56 to ensure that all patient care units have an approved, written practice document. The FP policy or CPG should address the following:
Identify the purpose of the FP policy or CPG guided by the patient- and family-centered care model, in which care is driven by the needs of the patient and family rather than controlled by HCPs, the health care system, or the patient’s disease.
Define key terms, including family, family presence, family presence facilitator, resuscitation, and invasive procedure.10,11,19
Identify the indications for FP during a medical alert, code blue, trauma resuscitation, and invasive procedure.
Describe the roles and responsibilities of the FPF to support the family.10,25,116 Describe the roles and responsibilities of other team members involved in the event in relationship to FP, including bedside care providers, resuscitation leader, physicians, and others.10
Seek agreement with and approval of the FP policy from stakeholders (administration, physicians, nurses, social workers, chaplains, child-life specialists, respiratory therapists, legal department,19 infectious disease department, risk management, and security department as appropriate).11,13
Instruct all providers involved in FP on the step-by-step approach to follow when implementing the FP policy or CPG.
Create FP documentation standards,52 including who is responsible. Suggested elements to document in a progress note in the health care record after the event include
If the family was assessed as appropriate per family behavioral contraindications
If the resuscitation team was consulted before FP
If FP was offered to the family as an option; if not, document the reason,19 such as combative or violent behavior, uncontrolled emotional outbursts or extreme emotional instability, and behaviors consistent with altered mental state due to use of drugs or alcohol
The family’s decision about being present and which family members wanted to participate
Support measures offered before, during, and after the event
If the family chose not to be present, support measures and updates offered to the family
Family behavior and reactions during and after the FP event
Patient outcome related to the invasive procedure or resuscitation
Plan evaluation of the FP program.11–13
Participate in team debriefings after FP events to address emotions and potential conflict, as well as determine what went well and what could have been improved.4,10,11,13
Debriefings can also provide recovery time for providers following a difficult procedure, resuscitation, or death.4,10,11 Share these learnings with the larger interprofessional team to improve future FP events.
Teams may find it useful to periodically assess their performance of FP using video-recordings or simulation.126 Kassam-Adams et al126 developed an observational checklist for assessment of team behaviors, which is freely available (Pediatric Resuscitation Observation Checklist for Patient/Family Centered and Trauma-Informed Care) at www.healthcaretoolbox.org/observation-checklist-pediatric-resuscitation.
Evaluate the FP program by assessing outcomes of patients, families, and HCPs in addition to the rate of HCP compliance in offering the option of FP to families.52 Identify target rates of compliance and delineate steps to take if compliance falls below the target; for example, reeducation of staff, inclusion in orientation and annual competency programs, and reminders via communication tools.11,52
Other Resources
Review the Institute for Patient- and Family-Centered Care’s website for resources on patient- and family-centered care and ways to maintain FP during a pandemic: www.ipfcc.org.
Contact an American Association of Critical-Care Nurses clinical practice specialist for additional information: [email protected].
Review the third edition of Presenting the Option for Family Presence,11 developed and published by the Emergency Nurses Association, which offers guidelines suitable for adaptation to critical care units. These guidelines include educational slides and handouts, an FP department assessment tool, a staff assessment tool, an educational needs assessment tool, a sample FP guideline, and other supporting documents. This resource is no longer available from the Emergency Nurses Association, but nurses can borrow it through interlibrary loan at a hospital library. Consult your medical librarian.
Consult resources for developing a protocol for FP, including defining team roles and expectations, such as the Palliative Care Network of Wisconsin’s “Fast Fact #233: Implementation of a Family Presence During Resuscitation Protocol at https://www.mypcnow.org/fast-fact/implementation-of-a-family-presence-during-resuscitation-protocol.
Access the 3 free videos “Training Parent Facilitators” developed by Martha Curley, PhD, RN, for the Cardiovascular Critical Care Nursing Program at Children’s Hospital Boston. These videos role-model how to be an effective facilitator with parents at the bedside and represent a simulation-based teaching resource in training FPFs. In 2 of the simulations, staff members support parents (trained actors) whose children are undergoing resuscitation and invasive procedures. The other video includes debriefings of the simulations with the health care team and family. The videos are available at www.marthaaqcurley.com/training-parent-facilitators.html.
Healthy Work Environment Assessment Tool. Participate in this free online assessment: https://www.aacn.org/nursing-excellence/healthy-work-environments. This tool measures the health of the work environment against the American Association of Critical-Care Nurses’ Healthy Work Environment Standards. Download your team results to access valuable resources to begin transforming your work environment and influencing patient, nurse, and hospital outcomes.
References
Footnotes
Reviewed and approved by the Clinical Resources Task Force, 2023
Financial Disclosures
None reported.